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Newsletter Archive|January 2004

 

------------===EYESONTHEPRIZE.ORG NEWSLETTER===-------------
             Volume IV, Number 11, January 2004
                http://www.eyesontheprize.org
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--==MISSION STATEMENT
         The mission of EyesOnThePrize.org, a nonprofit corporation,
         is to provide information and emotional support from the
         survivors' perspective to women with gynecologic cancers,
         their families and friends, and healthcare providers.
Katie Allen, Editor <editor@eyesontheprize.org>
--==SHARE THIS NEWSLETTER WITH A FRIEND
         Subscription information at the end of this email
-------------============CONTENTS============--------------
** Welcome
** January is National Cervical Cancer Awareness Month in the U.S.A
** What's New on the Web Site: 
   * Research Update: HPV Testing and Pap Smears
   * New Stories
   * New Resource
   * New FAQ
   * Ask the Pros on Cervical Cancer
** How You Can Help
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--==WELCOME
Welcome to this issue of the EyesOnThePrize.Org newsletter.
Our newsletter is designed to bring gynecologic cancer news
to you, alert you to what is new on the site, and to let you
know what's going on 'behind the scenes' at EOTP.
       
--==JANUARY IS NATIONAL CERVICAL CANCER AWARENESS MONTH IN THE U.S.A. 
EOTP wants to make sure you are informed about cervical
cancer risk, detection, and treatment. Visit our Focus on
Cervical Cancer page at:
http://eyesontheprize.org/advocacy/focus_cca.html
      
   From Mary Beth, EOTP.org Board Member and PR team member:
January is Cervical Cancer Awareness Month in the US! If
you're a gyn cancer survivor and would like to "get the word
out" please send this letter (adapted to your own situation,
of course) to your local newspaper. Or create your own
letter and send it!
------------------------------------------------------------
January 2004
Letter to the Editor
 (newspaper’s name)
 (newspaper’s address)
       
Last year, more than 80,000 women in the United States
received an unexpected diagnosis: cancer of a reproductive
organ. This means that on average, one woman in the United
States is diagnosed with gynecologic cancer every seven
minutes – that's more than 200 women in the United States
diagnosed each and every day.
While these types of cancer – including cervical, uterine 
and ovarian – are rarely discussed, they affect more women
than lung cancer and colon cancer.
January is Cervical Cancer Awareness Month. Far too many 
women seem to believe that cervical cancer is no longer 
a common nor deadly disease.
Unfortunately, an estimated 10,520 women in the United
States will be diagnosed with – and 3,900 will die from –
cervical cancer.
As a gynecologic cancer survivor, I encourage all women to
 take care of themselves by: 
   * Scheduling routine medical exams, including an annual
   pap test 
   
   * Visiting doctors whenever unusual symptoms
   develop 
   
   * Seeking the support of other cancer survivors
   if necessary
When I was diagnosed with cancer, I found much-needed
support through EyesOnThePrize.org, an international web
community that provides information and emotional support
from the survivor's perspective. The www.eyesontheprize.org
web site's resources include an email discussion list,
frequently asked questions, survivor's stories, a chance to
“Ask The Pros," links to resources, and an "In Your
Community” database that directs women to support groups in
their hometowns.
Sincerely,
 
(your name)
(your address)
(your phone number)
-----------------------------------------------------------
If your local newspaper publishes your letter, please let us
know: pr@eyesontheprize.org
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We invite Letters to the Editor: editor@eyesontheprize.org
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--==HONOR SOMEONE SPECIAL WITH A GIFT TO EOTP.org
Consider honoring a special anniversary or a loved one
"finishing the race" with a donation to EyesOnThePrize.Org:
http://www.eyesontheprize.org/donate/index.html
Your gift -- tax-deductible in the USA -- helps spread the
word about EOTP.org to women in need. And EOTP now accepts
donations via credit cards through PayPal!
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WHAT'S NEW ON THE WEB SITE
         http://www.eyesontheprize.org
--==RESEARCH UPDATE
 From Judy Knapp, Ph.D., MSW, EyesOnThePrize.Org Board
   Vice President
This month, Judy reports on a review of several large
screening studies on the relationship between certain
strains of human papillomavirus (HPV) and cervical cancer.
Analysis of data from these studies indicates that DNA
testing for presence and type of HPV is a better indicator
of pre-malignant changes than any form of Pap smear now
available. The authors conclude that using HPV testing in
addition to routine Pap smear to diagnose such conditions is
an effective way to manage them.
Visit:
http://eyesontheprize.org/links/researchupdate.html#jan2004
to read more.
       
--==NEW STORIES
 From Katie, Our Stories Editor
Two new cervical cancer stories have been added to Our
Stories:
Stehanie G's diagnosis came as a result of a c-section. Her
story is an important lesson in the importance of playing an
active role in your health care:
http://eyesontheprize.org/stories/stephanie.html
Vee J's story is filled with good, firsthand tips for
getting through a hysterectomy. Read it at:
http://eyesontheprize.org/stories/vee.html
Have a story of your own to tell? Send it to:
Katie, Our Stories editor at: stories@eyesontheprize.org
       
--==NEW RESOURCES
 From Georgia P. Resources & Links Editor
   links@eyesontheprize.org
NEW LINK
During chemotherapy treatment, we have many questions and
concerns; the Chemocare web site offers an excellent
overview to help with those. Check out the sections related
to: Chemotherapy drugs (an extensive listing), Managing Side
Effects (something everyone can use during treatment), and
Nutrition information. Scott Hamilton developed this site in
conjunction with the Cleveland Clinic Cancer Center, based
on his own experiences during cancer treatment. There are
also sections on Survivor experiences, and Complementary
therapies.
To learn more, visit EOTP's Resources section at: 
http://www.eyesontheprize.org/links/txdx.html#chemo
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PURCHASE BOOKS AT AMAZON.COM AND HELP EOTP.ORG
Don't forget that any book purchase made at Amazon.com
through our EOTP link, will earn EOTP.org a commission that
we turn back into support for women with gynecologic cancer.
--o--o--o--o--o--o--o--o--o--o--o--o--o--o--o--o--o--o--o--
--==NEW FAQ
 From Karen P., FAQ Editor faq@eyesontheprize.org
Chemo experiences vary widely, depending on the drug(s) and
dosage being used and the individual's own particular
response. Several women give an overview of their
chemotherapy experiences, answering the question:
"What should I expect during my chemotherapy
experience? Will chemo be really horrible?"
http://www.eyesontheprize.org/FAQ/tx/chemo.html
Can you help?
We are still looking for "general" accounts of the chemo
experience, especially for drugs OTHER THAN Taxol,
cisplatin, and carboplatin. In addition, our next topic
deals with "maintaining daily activities" during chemo, and
we are looking for information from women from all walks of
life - career women, stay-at-home moms, retired women etc. -
who have had various chemo regimes for gyn cancer.
If you would like to donate some written material to
EyesOnThePrize.org on this topic, please send your
submission to:
faq@eyesontheprize.org?subject=Chemo_FAQs
       
--==ASK THE PROS - CERVICAL CANCER QUESTIONS
In honor of Cervical Cancer Awareness Month, we are
featuring a collection of all our Ask the Pros questions
about cervical cancer. Check out them all out from our Focus
on Cervical Cancer page:
http://www.eyesontheprize.org/focus_cca.html#atp
       
Are they looking for a vaccine for HPV that will also cure
people already infected, or will it be only to prevent
future spread? Thomas J. Herzog, MD
How long do I have to wait before resuming my exercise
routine after a cone biopsy? Judy Knapp, PhD, MSW
Can I transmit HPV to my child or coworkers through
nonsexual casual contact? Vicente Colon, MD
What are the risks of a Loop Electrosurgical Excision
Procedure during pregnancy? John Comerci, MD
What is the difference between cervical carcinoma in situ
and CIN3 -- is one cancer and one precancer? Fredric V.
Price, MD
What are the risks for pregnant women who might have
cervical dyplasia? John Comerci, MD
Do all infections with HPV carry the same risk for
developing cervical cancer? Howard Marc Saul, D.O.
What is the difference between squamous cell carcinoma and
adenocarcinoma of the cervix in terms of survival rates,
treatment and growth of tumour times? Fredric V. Price, MD
What is the difference between a Stage 1a and Stage 1b
cervical cancer? Thomas J. Herzog, MD
How long does it take for moderate to severe dysplasia to
become cancerous? Howard Marc Saul, D.O.
       
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HOW YOU CAN HELP 
--==MAKE SOMEONE'S DAY WITH FLOWERS!
Irises, and all kind of flowers and gift baskets from
Proflowers.com earn EOTP.org 15%. Direct from the growers
for freshness and low prices.
http://www.eyesontheprize.org/store/flowers.html
--==SHOP FOR A GOOD CAUSE!
If you shop online, you can give EOTP much-needed support at
the same time!
iGive.com is an online mall of over 400 merchants who have
pledged a percentage of their sales to charitable causes.
Shop name-brands like Avon, GNC, LLBean, Hallmark, Eddie
Bauer, JC Penney, OfficeDepot, Gap, Old Navy, Toys R Us,
Dell Computers, PC/Macconnection and many, many more.
Following the iGive.com link below automatically sets your
cause to EyesOnThePrize.org -- all you have to do is sign in
with your email address and start shopping!
http://www.iGive.com/html/refer.cfm?causeid=18866
Or purchase mugs, tee shirts, sweat shirts and hats with
EOTP's logo at our CafePress store.
It all starts here:
http://www.eyesontheprize.org/store/
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  Copyright 2004, EyesOnThePrize.org, All Rights Reserved
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