My Story | Shelley, Ontario, Canada
Live each day to its fullest
Shock, disbelief, panic, terror, hopelessness
This nonstop train races on
Decision of oncologist, treatment, side effects tolerated
See others more serious suffering more
I was diagnosed with Stage 3b cervical cancer a year and seven months ago and I ploughed through five weeks of external beam radiation and three days of cesium treatment (brachytherapy) with constipation the only side effect. Six months later, I hemorrhaged, and a month after that, my kidneys failed. "Why?" I asked.
I almost died twice and the doctors couldn't tell me why . Then, I developed a small, dull pain in my pelvic area. Again I asked. "Why?" but the doctors couldn't tell me. Instead, they put me on injections of dilaudid. They prescribed an eight milligram (mg) dose every four hours, but, through my own will power, I am down to 1.75 mg every four hours. Now, they say they want me off this addictive drug, so I will see a pain management specialist in three weeks.
I have a stent in my right kidney and a nephrostomy tube in my left kidney. Next week a stent will replace the nephrostomy, so I will be free of urinary bags.
Since my diagnosis, I have had numerous problems with my healthcare providers:
Because of the way I was treated, I've given up on the medical profession. I was able to get more information from the radiation technicians than anyone else! Thank God for the Victoria Order of Nurses and volunteer drivers for the cancer clinic who provided help when I needed it most.
My husband and I manage my homecare on our own, and have done so since day one. Living with cancer has become my second life and I spend it writing stories and poems since I'm unable to work. I believe God will take me when it's my time. I think of the many people killed in car accidents, or murdered, and here I am, still alive. AMAZING!